RareICT combines wikis, semantic tagging and meta-data in a secure environment for patient-provider communication, MinJournal. Patients, their relatives, and health workers are offered a dynamic virtual environment to accumulate, exchange, develop and discuss contributed information, experiences and knowledge in a secure setting.

EngageLab developed the wiki in collaboration with IT-avdelingen, Oslo Universitetssykehus HF. A series of participatory design workshops were held with patients and their relatives as well as health professionals.

Read more at project website.

Project manager
Professor Anne Moen
anne.moen@medisin.uio.noEngageLab members
Ole Smørdal
Idunn SemPartners
Senter for sjeldne diagnoser, Rikshospitalet
Institute of Health and Society
IT-avdelingen, Oslo Universitetssykehus HF, Rikshospitalet
Types of engagement
Design work
Design workshops
Participatory design
Web design
Social media (wiki)
MinJounal (secure access)